October 2023
Bio Note: I was diagnosed with MS at 45 years old and am now 65 years old, looking back I prolly had it from the time i was 20, maybe earlier. I had a major episode at 30, though I didn't realize it, it's a tricky one to disagnose. I had agreed to take a friend to London (former travel agent) who was terrified of flying and had never flown. We had a great time, but she didn't realize how uneasy I was traveling with the needles to inject Copazone (I was part of a protocol that got it on the market) and I wanted to get a poem out that wasn't a pity party but expressed the fears of those early days.
Chanteys
Somehow, even though I live in a sea town, memorizing chanteys that old men passed down to lull us to sleep while our feet tapped under the covers, I couldn’t bear to hear the screams from the dented pot after we’d throw in that day’s catch. It was the heat rushing through their shells; they felt no pain. I recall strong brown arms and songs leaping up like hairs as my father and his father dipped me into the bay in white cotton. Later I was an agile otter, breaking shells on my belly, a sleek, slick woman child with pixie eyes. It is no surprise that fish heads and coarse rope became a suitor’s flowers. We’d love to feel the bait and tug of ugly creatures nibbling our wares. It never occurred what we were doing was wrong. Salty hairs rose off our stomachs when we sprawled, two starfish learning how to navigate a messy moon lit bed. Now, when I meet you on a Saturday night, ask my husband to tuck our last oyster in, we sip drinks with a salty edge and eat hot meatless meals that won’t harm a living thing. This fierce unspeakable love we have become.
Taking Sclerosis on Vacation
When you have a secret, it travels with you to London. You ask the sleepy night watchman where you can refrigerate your syringes. He winks, wonders why you do not appear high. When you see a woman stumble on the pavement, you ask if she needs help. She is brusque, says “this city needs help, all these broken sidewalks.” Meanwhile, your friend struggles to keep up. You queue endlessly to prove you can outdo your last undiagnosed trip. You start an affair with the same night porter who guards your habit. Outside the V and A, you wonder why you got there before it opens again, and whether the woman in the scarf is undergoing chemo. You wonder will a stranger still want to part your lips with his tongue if he knew you were holding back. You are numb today, actually. Sometimes this mystery comes and goes. You should save your feelings for the one who loves you anyway.
©2023 Laurie Byro
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